Overdue for a blog posting, yes? We have not been able to find the camera, so we don't have any recent photos. But for those of you who have joined us on Skype, you have had plenty of live video, singing, and even some verse.
Next week is Sam's procedure week. Here is our schedule:
- - -
Tuesday morning Sam is scheduled for an MRI at Children's. He will have to have anesthesia to keep him from moving while the scan is being done. After the MRI, the surgeon in the radiological procedure group will examine the MRI in preparation for the procedure. The MRI will also give a baseline image of his facial and neck physiology prior to the start of the sclerotherapy courses.
Wednesday morning Sam will be anesthetized again for the first sclerotherapy procedure. He will have a breathing tube inserted.
The procedure will likely take 2 to 4 hours. We will be in the O.R.
waiting area. After and hour or so, we should get an update from a
nurse liaison.
He will move to ICU after the procedure and be monitored to make sure the swelling from the procedure does not close off his airway or constrict any vessels. He will stay overnight. The breathing tube will be removed when the swelling has normalized and his throat is clear.
Thursday he is scheduled to be released if all goes according to plan. Happy Valentine's Day!
- - -
Here is the profile for the surgeon who will be doing the procedure, Dr. Amad Alomari.
When we go home, Sam will probably have Tylenol prescribed for discomfort, but otherwise should not require any post-procedure medications.
We will have a follow up visit with the otolaryngologist some weeks after the procedure to make sure the changes in his lymphatic malformation have not had an adverse effect on his physiology.
Moving forward, we anticipate having a few more sclerotherapy procedures to complete the closure of all of the large cysts. The additional procedures are likely to be scheduled in intervals of about 3 months. We have been told to anticipate 4 or more procedures, as that is typical for malformations similar to Sam's.
Next week is Sam's procedure week. Here is our schedule:
- - -
Tuesday morning Sam is scheduled for an MRI at Children's. He will have to have anesthesia to keep him from moving while the scan is being done. After the MRI, the surgeon in the radiological procedure group will examine the MRI in preparation for the procedure. The MRI will also give a baseline image of his facial and neck physiology prior to the start of the sclerotherapy courses.
Wednesday morning Sam will be anesthetized again for the first sclerotherapy procedure. He will have a breathing tube inserted.
The procedure will likely take 2 to 4 hours. We will be in the O.R.
waiting area. After and hour or so, we should get an update from a
nurse liaison.
He will move to ICU after the procedure and be monitored to make sure the swelling from the procedure does not close off his airway or constrict any vessels. He will stay overnight. The breathing tube will be removed when the swelling has normalized and his throat is clear.
Thursday he is scheduled to be released if all goes according to plan. Happy Valentine's Day!
- - -
Here is the profile for the surgeon who will be doing the procedure, Dr. Amad Alomari.
When we go home, Sam will probably have Tylenol prescribed for discomfort, but otherwise should not require any post-procedure medications.
We will have a follow up visit with the otolaryngologist some weeks after the procedure to make sure the changes in his lymphatic malformation have not had an adverse effect on his physiology.
Moving forward, we anticipate having a few more sclerotherapy procedures to complete the closure of all of the large cysts. The additional procedures are likely to be scheduled in intervals of about 3 months. We have been told to anticipate 4 or more procedures, as that is typical for malformations similar to Sam's.
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